Over the coming months, web resources from this site will be assimilated into the new Public Health England web portal or archived but for now you can continue to access the resources on this page.
Cancer intelligence for South Yorkshire
From 1 April 2013, the Knowledge and Intelligence Team (Northern and Yorkshire) will have responsibility for the cancer intelligence needs for the whole of Yorkshire. The Cancer Intelligence Team which was formerly part of Trent Cancer Registry, and is now part of the Knowledge and Intelligence Team (East Midlands)), have historically dealt with all cancer information requests for South Yorkshire, as well as for the East Midlands. As such, we will liaise with the Northern and Yorkshire KIT on any requests received for South Yorkshire going forward.
The type of data and analyses we can provide include:
- for different geographical levels and patient age ranges, numbers of cancer cases and deaths, incidence and mortality rates standardised by age, and survival, including trends over time
- listings of patients for audit or to update oncology databases (to authorised recipients only)
- data for research projects (with full ethics and Health Research Authority (HRA) Confidentiality Advisory Group (formerly the Ethics and Confidentiality Committe) approval)
- investigations on the risk of cancer clusters (in collaboration with Directors of Public Health).
A range of data is available on our website and via the UK Cancer Information Service, (to authorised users) but we can also respond to specific data requests.
Visit the 'Cancer Data' section of the website for:
- a summary of the most common cancers diagnosed in people in the former Trent Cancer Registry catchment population
- incidence, mortality and survival data for selected cancer sites, for the East Midlands and South Yorkshire areas
- PCT cancer factsheets providing a concise summary of cancer incidence, mortality and survival figures for each of the former 13 PCTs in the East Midlands and South Yorkshire, along with comparative Cancer Network data
Links to recently published reports, references to research papers and oral and poster presentation abstracts are available in the Publications Section.
- Overview of Ovarian Cancer in England: incidence, mortality and survival (published November 2012)
- NCIN data briefing: A Profile of Ovarian Cancer in England (published November 2012)
- The Gynaecological Cancer Hub web resource (launched June 2012) - links to another website
- Profiles of Cervical Cancer in England: incidence, mortality and survival (published October 2012 and February 2011)
- NCIN data briefing of Cervical Cancer Incidence and Screening Coverage in England (published February 2011)
- Data briefing on urgent GP referral rates for suspected cancer (published December 2011)
- 2009-10 Clinical Information Analysis (CIA) reports covering the East Midlands and North Trent Cancer Networks (published June 2012 - restricted access). CIA reports for earlier years are also available
- PCT cancer factsheets (published Sept 2008)
- Cancer Inequalities in the East Midlands report (published Oct 2007)
The UKCIS is a web-based analytical tool available to health professionals via a secure NHS Net connection. The UKCIS is populated with cancer registration data collected by all UK Cancer Registries, and mortality data provided by the Office for National Statistics (ONS). The types of analyses available include:
- Incidence trends (numbers, crude and age-standardised rates), 1985 to 2009
- Mortality trends (numbers, crude and age-standardised rates), 1985 to 2010
- Survival trends (numbers and relative survival percentages), 1985 to 2009 with follow-up to 2010
- Individual and common groupings of all cancer sites
- All Government Office Regions, Strategic Health Authorities, Cancer Networks, Primary Care Trusts and local authorities, as well as England and UK totals
- Age-sex profiles
For further details about the UKCIS download a copy of the UKCIS flyer.
To apply for access, please complete and return a copy of the UKACR UKCIS User Account Application Form. Forms can be completed electronically but should be printed off for applicant and authorising signatures and returned to us by post (details on the form). Following authorisation, access will be granted, if eligible.
Identifiable patient data include any of the following: name, address, postcode, date of birth, date or cause of death, NHS number, hospital number. As a general rule, the following categories should be regarded as being potentially identifiable data:
- Individual records even if they do not include variables, such as names, full postcodes, and dates of birth which would make them obviously identifiable
- Tabular data, based on small geographic areas, with cell counts of fewer than five cases/events (or where counts of less than five can be inferred by simple arithmetic)
- Tabular data containing cells that have underlying population denominators of less than 1,000.
Note: Data at this level is only released in accordance with national UKACR policies on confidentiality and our local Security and Data Protection Policy and Security and Data Confidentiality Operational Procedures.
If you are unable to find the information you need on our website, publications, UKCIS or elsewhere, please contact us with your specific request. We aim to process data requests within 20 working days and would ask you to bear this in mind when requesting data. However, we will endeavour to meet your local deadlines where practically possible.
To make a request, please complete and return a copy of one of our data request forms (these forms are to be updated in the near future)
- Summary request form for aggregated data that is not patient identifiable or potentially identifiable
- Patient-specific request form for data that is patient identifiable or potentially identifiable. Release of data at this level is restricted, please see above for further information.
If you need further help or advice before submitting your request please contact us (telephone 0114 2263560).
We offer a service to Directors of Public Health for the initial evaluation of potential cancer clusters and are willing to advise and collaborate in more detailed investigations should this be justified. Initial contact should be to the Director, Knowledge & Intelligence Team (East Midlands)
or Head of Cancer Intelligence,
(telephone: 0114 2263560).
Members of the public who are concerned are advised to contact the Director of Public Health for their own area in the first instance.
Trent Cancer Registry worked with colleagues in the Northern & Yorkshire Cancer Registry and Information Service (NYCRIS) to provide cancer surgery, referral and mortality data for the production of an NHS Yorkshire & the Humber Cancer QIPP (Quality, Innovation, Productivity and Prevention) resource pack. The analyses presented in the resource pack are designed to offer insight and raise questions about variation in performance at local level.
East Midlands Quality Observatory Cancer Care Pathways Quality Indicators
The Registry provided East Midlands survival analysis data and post-operative colorectal cancer mortality rates to the East Midlands Quality Observatory. This was used to produce cancer care pathway quality indicators with regard to clinical effectiveness and patient safety.