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Gynaecological Cancers

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About lead roles

The National Cancer Intelligence Network (NCIN) was launched in June 2008 in line with the commitments of the Cancer Reform Strategy, to which the collection, analysis and publication of high quality data on clinical outcomes was recognised as key.

The National Cancer Registration Service and distributed Knowledge and Intelligence Teams support the work of the twelve Site Specific Clinical Reference Groups (SSCRGs). The SSCRGs were established in 2009 to ensure high quality specialist clinical input and engagement within the NCIN. Each of the eight English regional registries has at least one lead role. We are the lead for gynaecological cancers in England, supporting the Gynaecological Cancer Site Specific Clinical Reference Group (SSCRG). We also maintain the Gynaecological Cancer Hub, as NCIN lead registry for these cancers. The Gynaecological Cancer Hub is a web-based resource, launched in June 2012, providing data and intelligence on gynaecological cancer in England. It includes Gynaecological Cancer Profiles, an interactive tool presenting comparative data for each PCT and Cancer Network; key facts, reports and briefings; sources of evidence; guidance for health professionals and details of current gynaecological cancer projects.

Our work as lead for gynaecological cancers

In England in 2009, there were just over 16,440 cases of gynaecological cancer. This figure includes around 6,250 cases of cancer of the uterus, 5,860 cases of cancer of the ovary, and 2,735 cases of cancer of the cervix; the three main types of gynaecological cancer.

As national lead registry for gynaecological cancers, we are building up our knowledge of gynaecological cancer data and its possible uses, and developing analytical products in order to:

Describe the impact of gynaecological cancers on the female population
Provide comparable and timely information

Our input is focussed through a programme of work that we have agreed with the Gynaecological Cancer SSCRG, and includes involvement in the ovarian component of the International Cancer Benchmarking Project (module 1).

Other projects include the publication of a national report and NCIN data briefing on ovarian cancer:

and the publication of a further NCIN data briefing:

NCIN data briefing: Short Term Ovarian Cancer Mortality (published April 2013)

Supporting the National Cervical Screening Programme (NHSCSP)

As part of our role as gynaecological cancers lead, we have also agreed a funded programme of work to support the National Cervical Screening Programme. The main aims include the analysis of trends and variations in cervical cancer incidence, mortality, survival and treatment and the coordination of a national cervical cancer audit of symptoms. Specifically, we have agreed the following large projects, together with a selection of smaller pieces of work:

Profile of Cervical Cancer in England: incidence, mortality and survival (published October 2012). There is also an accompanying Powerpoint slide set.
Profile of Cervical Cancer in England: incidence, mortality and survival (published February 2011)
NCIN data briefing of Cervical Cancer Incidence and Screening Coverage in England (published February 2011)
Development of a Cervical Screening and Cancer e-Atlas (launched October 2010), data from which has now been incorporated into the Gynaecological Cancer Profiles as part of the Gynaecological Cancer Hub
To act as the project office for the national evaluation of cervical symptoms in the 25-29 year old age group

The NHS Cervical Screening 2011 Review includes reference to the analytical work carried by the Registry on behalf of the NHSCSP.

If you would like any further information about our role as national lead registry for gynaecological cancers, please contact us or by telephone on 0114 226 3560.